Full Circle: Olivia’s Bright Spring and the Power of Progress
Last week brought one of those full-circle moments—Olivia delivering hundreds of eggs to Children’s Mercy for the first time, and then being recognized as...
We are a non-profit organization focused on Cystic Fibrosis awareness, sharing our story, and raising funds for a cure.
In the United States, there are close to 40,000 children and adults (estimated 105,000 worldwide) living with CF.
Cystic Fibrosis affects majority of the bodily systems but the most common symptoms are:
Cystic Fibrosis, or CF for short, is a disease that primarily causes issues with the respiratory and digestive systems. At the core, the disease is caused by a mutation of the cystic fibrosis transmembrane conductance regulator (CFTR) gene.
These mutations cause the CFTR protein to become dysfunctional, and therefore cannot help move chloride – a component of salt – to the cell surface. Without chloride, water does not make its way to the cell surface which in turn causes the mucous throughout the body to become thick and sticky.
We raise awareness and vital funds through hosting and participating in annual events locally, regionally and nationally. These funds are donated to the Cystic Fibrosis Foundation and go towards research, preclinical drug development, and high-quality, specialized care and ultimately finding a cure for all people with CF.
We understand that this fight is not just our own and we couldn’t do this without the village of supporters like you. There are multiple ways you can support our organization and we are so happy for you to join us as we fight against this horrible disease!
This year is the second year we have hosted this fundraising basketball tournament. You can support us by playing, donating, or volunteering to help during the event.
We participate in the CFF's Great Strides (walk) and Xtreme Hike yearly fundraising events. Join our Salty Jeans team to help raise money and walk or hike with us!
If you cannot join us for one of our yearly events, you can always make a direct donation to Salty Jeans. All event proceeds and direct donations go directly to the Cystic Fibrosis Foundation.
I am strong. I am wise. I am beautiful. I am brave.
The name “Salty Jeans” is a playful reference to the loss of sodium chloride, aka “salt”, people with CF experience—resulting in their skin being salty. And “Jeans” isn’t about your favorite apparel: It’s a play on “genetics” and Olivia’s middle name.
Last week brought one of those full-circle moments—Olivia delivering hundreds of eggs to Children’s Mercy for the first time, and then being recognized as...
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"She doesn’t look sick…” One of the hardest parts living with cystic fibrosis is the fact that symptoms are often invisible to others.
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