We are a non-profit organization dedicated to raising awareness for cystic fibrosis (CF), sharing our journey, and funding research for a cure. Our mission is deeply personal—our daughter, Olivia Jean, battles CF every day, and we won’t stop until a cure is found for her and everyone living with this disease.
Cystic fibrosis is a relentless, life-shortening genetic disease that affects the lungs, digestive system, and other organs. While medical advancements have come far, there is still no cure for CF patients, including Olivia.
Nearly 40,000 children and adults in the U.S. (and about 105,000 worldwide) live with CF, with over 1,000 new cases diagnosed each year.
Cystic fibrosis impacts everyone differently, and for Olivia, that means managing both respiratory and digestive symptoms every single day. Here's what CF looks like in our world:
Due to the body’s inability to properly regulate salt levels, Olivia loses excess sodium through sweat, putting her at risk for dehydration—especially in warmer months.
Thick mucus builds up in her lungs, triggering daily coughing as her body works to clear her airways.
That same mucus creates a perfect place for bacteria to grow, leading to chronic infections that can damage the lungs over time.
Inflamed, congested airways make breathing a struggle—especially when she’s tired or sick.
Even though Olivia eats well, her body can’t absorb nutrients properly without digestive enzymes, affecting her growth and weight gain.
Just like in her lungs, mucus collects in the sinuses, causing congestion, inflammation, and frequent infections.
Olivia deals with uncomfortable GI symptoms like constipation and stomach aches daily—requiring a consistent mix of medications and Miralax.
Because she loses so much salt in her sweat, Olivia is more prone to dehydration, especially during physical activity or heat.
Between early-morning treatments, digestive struggles, and respiratory flare-ups, Olivia often tires easily—especially during activity-heavy days.
Watch this short video of Olivia using her chest vibration vest—a key part of her twice-daily airway clearance routine.
We host and participate in fundraising events to support research, drug development, and high-quality CF care. Every contribution helps move us closer to a cure.
Total Funds Raised for 2025 (last updated July 2025)
The event is family-friendly and for all ages, featuring classic field games reimagined with cystic fibrosis (CF) awareness themes. Participants will enjoy fun challenges, a scavenger hunt, and opportunities to learn more about life with CF – all while raising critical funds for research.
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Score big for a great cause! Purchase your Super Bowl Squares, cheer on your team, and get a chance to win cash prizes—all while supporting the Cystic Fibrosis Foundation. This 50/50 fundraiser is a fun and easy way to make an impact. Every square brings us closer to a cure!
Make Easter extra special while supporting a great cause! Order pre-filled eggs to be hidden in your yard or delivered to your door for a fun-filled hunt. You can also donate eggs to bring joy to children at Children’s Mercy Hospital. Every egg makes a difference!
Since 2019, our family has been dedicated to raising funds and awareness for the Cystic Fibrosis Foundation—what began with simple donation asks has grown into a full calendar of heartfelt events that bring our community together in the fight for a cure.
Today, Salty Jeans leads several creative fundraisers throughout the year:
Every event is a chance to build community, raise vital research funds, and help us get closer to a day when CF stands for Cure Found. Join us in any way you can—we truly can’t do this without you.
Behind every great cause is a team of dedicated people—and Team Salty Jeans is no exception. We’re a family-driven community, united by love, resilience, and a deep commitment to fighting cystic fibrosis alongside our daughter, Olivia.
Each year, we proudly participate in two major events through the Cystic Fibrosis Foundation: the Great Strides Walk in Kansas City (Spring) and the Xtreme Hike in Missouri (Fall). By joining our team, you’ll be part of something bigger—raising critical funds for research, spreading awareness, and helping add more tomorrows for everyone living with CF.
Our blog, Faith4ACure: A Family’s Journey, is where we share the heart and soul of Team Salty Jeans. Here, you'll find real stories of resilience, hope, and advocacy—from Olivia’s journey and our family’s experiences to the latest in cystic fibrosis research, fundraising efforts, and community impact.
Stay current with upcoming events, inspiring CF warrior spotlights, and practical insights on CF care and awareness. Whether you're a supporter, a fellow CF family, or just learning about the cause, we invite you to follow along, get involved, and help us turn CF into Cure Found.
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