Family-Led CF Advocacy

Courage Over Illness. Community Over Fear.

What began as one family’s journey has grown into a community committed to showing up, for children navigating serious illness, for families walking similar paths, and for a future shaped by hope and progress.

Give Courage Meet Olivia Jean

7+ years

supporting the cystic fibrosis community

Hundreds

of hospital families reached through give-back initiatives

10+ (and counting)

community events created to build awareness and connection

$10,000+

raised for cystic fibrosis research

Built by Family

Who We Are

Salty Jeans was founded by a family navigating life with cystic fibrosis and shaped by one simple belief: no family should walk this journey alone.

We advocate, fundraise, and build community-centered experiences that prioritize courage over illness and people over fear. Our work is rooted in real life, hospital stays, daily treatments, hard conversations, hopeful milestones, and the people who choose to show up again and again.

Explore our mission

Inspired by Olivia

Our Story

This movement began with Olivia, and grew alongside countless families navigating cystic fibrosis and complex medical care.

Her experiences have shaped how we see courage: not as something loud or fearless, but as persistence, vulnerability, and the willingness to keep going. That understanding drives how Salty Jeans shows up, through grassroots fundraising, family-centered events, and awareness efforts that connect real stories to real outcomes.

Meet Olivia Jean

A Name Rooted in Cystic Fibrosis

The Meaning of Salty Jeans

The name Salty Jeans reflects both science and story.

“Salty” references a common early sign of cystic fibrosis. “Jeans” nods to genetics, and to Olivia’s middle name, Jean. Together, they represent the intersection of diagnosis and identity, medicine and humanity.

It’s a reminder that progress is personal, and that behind every advancement is a family, and a community, that cared enough to act.

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Supporting Families Today and Tomorrow

Where Courage Meets Action

Support through Salty Jeans is designed to hold both the present and the future.

Locally, we focus on creating moments of comfort and connection for children and families spending time in the hospital. Nationally, we help advance cystic fibrosis research and care through sustained fundraising and advocacy.

Every event, campaign, and contribution plays a role in strengthening families now while helping shape what comes next.

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